Tuesday, May 27, 2025

Hydro Warriors: The Adventures of Aquaman and Water Woman

As a general rule I do not find hydrocephalus, the neurological condition I was born with, funny. However, some of the medical meanderings as I have mozzied my way through this life have been quite amusing and that is what I wish to discuss. So, I want everyone to take a moment, reach behind your lowermost lumbar area and make sure there is not any lumber lodged back there. If there is, go ahead and remove it. Now we may proceed.

I joined a hydrocephalus support group on Facebook a few months ago. Even the entry into the group was wild. The admin was like “Tell us about your connection to hydrocephalus.” And they give me a textbox the size of a tadpole to respond. My gaze slowly shifted to my bookshelf and the three-ring binder labeled “Mark’s Medical History” that is currently one post-it note documenting a paper cut away from completely unraveling. 

I don’t have to tell anyone this, but the spiritual gift of summation slipped through my fingertips long ago. So, I just kind of blacked out and bashed buttons (an occurrence that writers call The Flow, but people with annual appointments with a neurologist refer to as “worth mentioning at your next visit.”) I just hoped that some of the basic buzzwords like “enlarged ventricles” “cerebral spinal fluid buildup” and “moderate to severe hemorrhaging” made their way into my application. I waited a day or two in order to find out if I “got in.” This felt like the most sadistic state school entrance essay of all time.

Anyway, I was accepted and on a sentimental note it has been cool to be able to communicate with people who I have a shared experience with. People will post about life milestones and share the anniversary date of their shunt (tube in the head) placement. I don’t know if I’m supposed to be getting people something for these anniversaries, I don’t know if I should be receiving something on mine, but no one in the group seems upset with me so I think I am okay. 

Just like other mechanical devices, shunts break from time to time and need to be replaced via surgery (revisions). I have met people who have had one shunt their entire life (I question/am jealous of the validity of their diagnosis.) And I have communicated with people who have had 50+ revisions, after someone’s 50th revision patients receive an a “Golden Brain” award, or if they don’t, they definitely should. While I do not wish to disclose my current number, the digit serves to reinforce my long held belief that I am almost excessively average 

An interesting layer of artificial animosity exists amongst the group members based on whether the shunt is implanted on the left or right side of their head. The number seems to be split right down the middle and I don’t see what has thus far been a back and forth of clever comments vamping up into full fledged violence. This move would be unwise for everyone involved given that the militants on both sides of the battle all have medical devices implanted in their head. The conflict would start out with battle lines being drawn and then dissolve into what I imagine would resemble an underfunded boxing camp where people registered and then the organizers realized that they didn’t have the means to obtain coaches, punching bags or gloves, so everyone was told to work on head movement the whole time. Aside from a general aversion to violence, a hashing out of our differences with handheld weapons among hydro warriors with shunts on the left and right concerns me because my shunt was originally on the right side, but after multiple revisions and lots of built up scar tissue, my shunt was moved to the left side. So, I run the risk of not being accepted by either side. However, I have tried to quell this fear by reminding myself that human beings on the left and right have always gotten along and we have routinely been able to see passed our differences as we all strive to help our fellow human and improve life for one another. 

Another divisive nature of this disease is that there are different kinds of shunts. VPL which is considered the cheapest one. VA which people believed worked at one point, but those who have it now are experiencing major downgrades in how it serves them today. LP seem to make people inexplicably good poets and VP shunts, these make people incredibly insecure and they believe that someone is better than them and they could be called upon to do something that they could catastrophically fail at at any moment. I have a VP shunt. Now, VP stands for something fun, exciting and easy to remember that you can look up and learn on your own time. VP is more commonly associated with the homie to the homeowner of the White House. Much in the same way people name their car, I name my shunt after the vice president of the time when I have the revision done. My last revision was in 2010, so I named my shunt Joey.

Another role that names play amongst the group is that people in the group refer to themselves or their loved one dealing with the affliction as “Hydro Warriors” and listen, I have no problem with empowering terminology used amongst a group of people to say I am not the sum of my doctors notes, but I wish I had been consulted. Firstly, Hydro Warriors sounds like the plumbing company you call when your first choice is booked out, your second choice is on vacation and your third choice is out because he is getting a colonoscopy. Secondly, Aguaman and Water Woman are literally right there! However, the name seems to have gained acceptance and widespread use within the group, so this idea is destined to roll around this big ole head of mine until I inevitably forget about it. 

Some individual posts of note include someone asking if it is okay for people with hydrocephalus to drink coffee. I will admit, this was not something I looked into when I started drinking coffee ten years ago. Judging by the comments I am not alone in this and my fellow shunt-having siblings and I are on the verge of drinking South America dry. Can our stories be a little nonlinear and nonsensical? Sure, but I any neurologist worth their Oxcarbazepine would attribute that to a shunt issue. 

Another inquiry that keeps me up at night was a young man asking if anyone else has issues with…well, I won’t use the exact word, but it describes a situation where someone thinks that they are just going to pass gas and it ends up having a little garnish on it. While I understand that pooping is a universal human experience and I admire the crap ton of courage it takes to make that inquiry, I can honestly say that I could have gone my whole life without reading that and I think I would turn out fine. That was posted several years ago and I still think about it. While I would never claim to be able to keep information stored away indefinitely, at this point I fear that this post will swirl around my cereal strainer until my cardiovascular system craps out for good.

Anniversaries of shunt placements are not the only thing that tells me anesthesia-laced love is in the air. Someone posted “Hey, long shot, but is anyone on the Palmer Archipelago looking for that special someone? (location may have been changed to protect identity and for comedic effect.) I kind of respect it from a “shoot your shot” perspective. However, the comment also made me realize something about myself. Don’t get me wrong, I am looking for someone I have things in common with, but I mean like music, food and movies. I am not sure if this makes me a bad person, but with regards to the medical history of the future Mrs. Woonton I am kind of specifically looking for someone who doesn’t have a shunt. I am not opposed to upholding my end of the “in sickness and in health” vow, but two broken shunts can’t get us to the hospital. Am I a horrible human or a good planner? And I know everyone is already aware of this, but of course this comment came from a guy. Only a male could walk into a virtual room of parents dealing with uncertainty and patients processing pain and be like “What, there are women here?!?! Hello ladies” 

Without a doubt, the most memorable post I have seen is someone point blank asking “What is the average lifespan of someone with hydrocephalus?” This permanently reset my dial for what I consider a good daily “doom scroll.” Prior to this I had seen teams I was pulling for experience defeat and political decisions that weren’t to my liking. I have now seen someone whose medical history mirrors my own casually be like “Hey, when can we all expect to die?” And that….that’s just a real downer.

So, where to turn in a time like this? I looked up celebrities with hydrocephalus and all I found was a member of the Partridge Family. Which makes a lot of sense with their hit song being the famous words from the neurosurgeon “I Think I’ll Shunt You.” Between this and the only “celebrity” I share a birthday with being Benito Mussolini, I felt absolutely dejected. Given the underwhelming celebrity idols, the fact that the only images a search for hydrocephalus returns are babies with big heads (whether or not you choose to verify this is between you, your internet history and the higher power you subscribe to) and the old heads in my life whose comedy careers peaked in the 60s who liked to quip that I have the “perfect face for radio” I was determined to take my writing talent and become the face (or head) of hydrocephalus. And then it happened…..

Freakin’ Billy Joel cancelled some shows due to pressure in his head and he was later found to have hydrocephalus. Everyone in the group was posting about it and I once again was faced with a self revelation. I was born with hydrocephalus and I don’t know life any different and through the group I learned people can develop the condition later in life. I have come to terms with the fact that I “look down” on them the same way a “Lifer” in prison looks down on other inmates. I was the only failed surgery in over one hundred operations by a neurosurgeon to create a pathway through the third ventricle in the brain and eliminate a need for the shunt. That sucks but I like to imagine he has a dart board with my face on it and there is something sadistically satisfying about knowing I put a stop to someone’s win streak. 

Lastly, I played two piano recitals a year for six years. Not to the scale or skill of that of Billy Joel, but I have a particular set of skills and a stepsister who practices law and I WILL seek financial compensation.

Monday, May 5, 2025

Badges

 I am seeing a lot of these “Top Contributor” and “Rising Fan” badges on Facebook. I say we bring back a few of the Pokémon themed badges in certain social media situations 

Dynamo Badge: Awarded to the person who responds to and follows through on committing to a “can someone pick up/drop off at this time?” post 

Earth Badge: Awarded to the person posting “If you need to reach me, do so on here, because my phone is currently 70% water” 

Glacier Badge: Awarded to the person who either posts something unnecessarily lengthy or something where you click “See More” and just go “Yeah, no.” I just earned my hypocrite badge 😬😬😬

Storm Badge: Awarded to posts with the most typos. I mean, it’s social media not a Masters Thesis, but come on people. Was this post written on a roller coaster? 

Volcano Badge: Awarded to the person who posted something in 2010, with a comment that became socially unacceptable in 2015, that got unearthed and got people outraged in 2020, because that is who that person is and who they always will be forever and ever. Amen 

Marsh Badge: Awarded to both participants in those posts and comments that go something like “I think this” “Well, I think that.” “Ok, then post that on your page.” Because we can post our opinion, but we better not dare comment it. 

Mineral Badge: Awarded to the “If you receive a friend request from me don’t accept it, because I got hacked. The individual who sent it is inorganic and not living” post 

Plain Badge: Awarded to the person who “likes” their own posts 

Boulder Badge: Awarded to the person who posts happy/motivational quotes that on our good/ok days are fine, but on your bad days harden heart like “Get out of here you ridiculous ray of sunshine.” 

Cascade Badge: Awarded to the person who swears the most in their post. Cascade is a cleaning product, people who swear are said to have a “dirty” mouth, so yeah. I wanted to end on a real high note there. I know Pokémon ends with credits so here’s a list of Japanese celebrities:

Akira Kurosawa 

Hayao Miyazaki 

Ken Watanabe 

Takeshi Kitano

Yoko Ono 

Naomi Osaka 

Oda Nobunaga 

Tokugawa leyasu 

Haruki Murakami 

Hiroshi 

Hiroyuki Sanada 

Mika Nakashima 

Hideyo Noguchi 

Sakamoto Ryoma 

Shigeru Miyamoto 

Tadanobu Asano 

Takashi Miike 

Haruna Kojima 

Hideki Tojo 

Saturday, November 2, 2024

“No, I am Your Bother”

 The kids that were born between 2010 and 2025 are/will be known as Generation Alpha. In zoology, the alpha is the dominant animal in a particular group. In astronomy, alpha is used to describe the brightest star. Personally, I can think of no better adjectives to describe this era early stage earthlings than tough and bright…..

Unfortunately, based on an experience I had this summer, the issue of an obvious ineptitude and oblivious offspring is no longer a problem confined to humankind. 

When I was growing up, my parents had a bit of a building structure and beams called a bird feeder. Now, despite what the name might have one believe, this device was predominantly used for feeding….birds. However, some of the more surly squirrels and cheeky chipmunks could gain access to the outdoor amenities. I can recall many a time poking my head out of the back door going “HEY!” and the critters would do this depressed dive bomb off of the deck like “Ah, man.” 

I have no knowledge of the history behind when humans and our furry friends agreed that this was the course of action we would take. I can’t recall a signing of the Treaty of FurGuy or anyone being held accountable at the Furmberg Trials. What I can tell you is that this agreement has been broken. 

Whether, the squirrel in the following story was male or female I have no idea, I’m not a zoologist, so instead of naming it I am just going to put a 🐿️ (which I am pretty sure is a chipmunk 😏) and you can decide what you want to call it. Although I will throw out names like: My Name Is Squirrel, Squirrel Ives, Squirrelly Joe DeRita, Elizabeth Squirrelly, Squirrelly Temple and Mother of Squirrel. 

Over the summer, I was eating breakfast and looking out at the bird feeder, at that very moment, 🐿️ had made (her or his) way onto the deck and was eyeing the bird feeder. I (reluctantly) got up from the table and made my way over to the door, easing it open. I stuck my head out and mustered up all of the meanness that can come from an individual whose only detentions in school came from unexcused absences and gum chewing and said “HEY!” 🐿️ looks into the woods behind trying to identify the source of the sound. 🐿️ continues the rotation and almost looks startled to see me (which had me flustered before conflict even ensued.) 🐿️ continues to look at me as if to say “Can I help you?” And I was like “Get out of here!” 🐿️ continues to stare unmoved with birdseed falling out of both sides of his/her face as if to say “I think you and I both know that your earliest childhood fear was Alvin getting yelled at in the Alvin and the chipmunks Christmas song and it is not a problem for me to get a couple of buddies up here and make that happen.” 

“I…..I don’t see what that has to do with anything.” 🐿️ could tell that she/he had me on the ropes.

“That doesn’t matter!” I said with a little more pout than I was hoping, mostly trying to reassure myself at this point. “And those are chipmunks, you are a squirrel.” 

“Yeah” 🐿️ said, “I will give you give you five pine needles if you can tell me the difference between the two.” 

“……Ok, first of all, least appealing sales pitch of all time and secondly, I am not arguing with you, I’m going to get the BB gun.” I turned my back and headed towards the door.

“Alright, alright I’ll go.” 🐿️ relented, “but we’ll be back and in greater numbers.” 

I froze with my hand on the door knob and half looked over my shoulder “Wa…..was that….a Star Wars reference?” 

“Yeah.” 🐿️ said bashfully staring down swirling her/his paw in the bird seed on the railing seeming almost ashamed for having made a joke during a confrontational conversation. 

Still not completely turned around I said “I thought it would mean nothing to me to go downstairs, grab my BB gun and send you sailing off the deck, but now……I’ve got a bad feeling about this.” 

🐿️ ‘s eyes lit up and then quickly looked away, embarrassed to have formed a connection with the inhabitant of a home he/she tried to invade. And I did go grab the BB gun and when I returned 🐿️ was gone. While the departure of the other half of this delightful interaction made me sad, I was also relieved, because if I ever see that animal again I know what that means. 


















Thursday, September 26, 2024

The MBA Draft

 Stores that have those Now Hiring signs that are like “Come join our team” as if people are going to be like “I want to play a game!” Sure, I’ll join the “team” as long as I get to full speed chest bump my coworkers when we complete a task, throw some/all of the materials I work with at some point and every December there is a widely televised report about several prospects that the company is interested in bringing on and the five people most likely not to be there come January.

Wednesday, September 25, 2024

Arrest Room

 Everyone should go to Pelham house of pizza, their cheese pizza and meat lovers calzone are out of this world and the following is in no way a defamatory shot at the establishment 

I went to pick something up at PHOP and towards the back of the dining area there is a door with a sign on it that reads “No public restrooms. Please don’t ask.” 

I laugh every time I see it. Why is that a two sentence message? I mean I am all for unnecessary rambling, but why are you getting so defensive? It’s like, this is not a bathroom, some of us don’t even know what is back here and we don’t want to talk about it, ok? 

I have three theories:

1. The door leads to a secret land called Carnia where ingredients are made cheaply and deliciously and they don’t want their competitors to find out about this huge advantage they have in ingredients shipping time 

2. They don’t fire employees, but every month they choose a worst performing employee, tape up their mouth and limbs and throw them in there 

3. There is a Walter White situation, the business is a front and they are cooking more than just pizza 

Again, the food is delicious, you should definitely go there and after you have purchased something, you should get all panicked and wide eyed and please PLEASE ask if they have a bathroom.

Friday, July 5, 2024

Dehumanifier

 Gossip, secrets and rumors definitely make me uncomfortable, but I recently learned that I get equally on edge when I walk into the basement to the whirring of the dehumidifier and it cuts out the second I reach the bottom of the stairs and all that is left is just this uncomfortable, awkward borderline suspicious level of silence. I just glance over at the inanimate, inaudible appliance like "I'm sorry, am I interrupting something?" 

I don't mean to revamp any AI invasion arguments, I am just saying, be careful out there people, I think they are planning something.

Tuesday, July 2, 2024

Babbleonian

 I found this while going through some boxes in the attic at my parent's house. We could talk about the hair, but we are not going to. I was never an artist and I know that. Instead, I would like to focus on what I (and my mother) believe to be letters put together in an attempt to form words.    

I am now convinced that every parent of a child deserves at least honorary (if not a legitimate) bachelor's degree in Linguistics specializing in the study of endangered/extinct languages. Every teacher deserves a master's degree and every teacher who is also a parent should get a PhD, because to me this looks like someone was woken from a deep sleep, blindfolded, given seventeen cups of coffee and then they were asked to draw what the inside of a pinball machine looks like.